In spite of all the established advances of modern medicine, some people are attracted to non-traditional or “natural” cures and approaches. A number of these are not dangerous. As a cancer specialist observed in the past year, people receiving cancer treatment will often try meditation or vitamins as well. When such a change is alongside, and not in place of, evidence-based treatment, this is usually not a concern. If it reduces distress, it can be beneficial.
But the proliferation of online health influencers presents challenges that authorities and regulators in many countries have yet to grasp. An investigation into a particular organization providing membership and advice to expectant mothers has exposed numerous cases of third-trimester fetal deaths or other severe injury connected to mothers or birth attendants associated with it. While the company is headquartered in North Carolina, its influence is international.
“For whole populations, going through labour and birth without skilled support is associated with higher levels of risk for mother and baby,” as stated by a professor of midwifery.
Childbirth without medical assistance, sometimes called free birth, is permitted in nations including the UK and US. The risks are not well understood due to a lack of data. Childbirth can be a daunting experience, and excellent care is far from guaranteed. In England, a shocking recently published report found two-thirds of hospital maternity services to be unsafe or in need of improvement.
Concerns of medical systems and specific, longstanding issues with maternity care are in many cases justified. A significant number of the women interviewed for the inquiry had previously experienced distressing births.
But while mistrust of institutions may be rooted in experience, it has also proved to be a fertile ground for other influencers looking for converts to their unorthodox methods and DIY philosophy. During the pandemic, a “wellness” industry ostensibly focused on healthy living was involved in spreading lies about vaccines and feeding suspicion about government advice.
Worry is growing that such ideas are gaining more general traction. One presentation given at a medical symposium focused on misinformation, which it said had “acutely worsened in the past decade”. This investigation shows that behind the facade of an rebellious sisterhood lies an operation that trains women as social media influencers as well as birth attendants. The group does not claim to be a certified medical provider.
There is no turning the clock back to a time when doctors were presumed to know best. Vast quantities of scientific research are published online and many people use these to beneficial effect. But there is also a need for safeguards from poor advice. It is widely understood that the automated systems used by tech companies reward increasingly sensational content.
In the UK, necessary reforms to maternity services are urgently needed. They must include the option of home birth and the provision of clear information to empower women in choosing their care. Policymakers and organizations including the World Health Organization should also develop strategies for the online information landscape so that evidence-based healthcare is not compromised.